# Forms/Questionnaires in FHIR (including End Of Life Care)

**Category:** [FHIR](https://openhealthhub.org/c/fhir/31)
**Created:** 2019-03-29 10:36 UTC
**Views:** 1682
**Replies:** 2
**URL:** https://openhealthhub.org/t/forms-questionnaires-in-fhir-including-end-of-life-care/2038

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## Post #1 by @mayfield.g.kev

I'm not going to town on the why you would use it but some good reasons are here https://fhirblog.com/tag/questionnaire/ David Hay discusses many simple use cases. 

The example I will use is the End Of Life Care API from NHSEngland/NHSDigital/Yorkshire Ambulance Service.
This uses version 1.2 of this specification https://developer.nhs.uk/apis/eol-alpha/index.html 

The SCCI 1580 has been turned into a FHIR Questionnaire and a set of profiles on FHIR resources. The Questionnaire can be found on this link: https://data.developer.nhs.uk/ccri/term/questionnaire/4
(or by using postman GET https://data.developer.nhs.uk/ccri-fhir/STU3/Questionnaire/4)

This Questionnaire defines how the FHIR QuestionnaireResponse should be built. So it doesn't define how the form will look, it just defines how the system returns the information. 

![52|690x354](upload://q3xPjOs1FBppo4ZWY5zLw5R5DWf.png) 

An example QuestionnaireResponse conforming to these rules can be found by running this query
GET https://data.developer.nhs.uk/ccri-fhir/STU3/QuestionnaireResponse/6

If you run this query you can also validate it conforms to the questionnaire by using the validation service in the CCRI (https://data.developer.nhs.uk/ccri/term/validate). If you try this you should find one issue (that's a fault in the CCRI)
[Note: the Questionnaire to validate against must be on the CCRI, the CCRI supports POST Questionnaire so you can add your own]

A rendered version of the EOLC QuestionnaireResponse can be found on the [HIE Portal](https://data.developer.nhs.uk/ccri/camel/cc-portal). First search for Patient 'Kewn' and when the summary record is displayed click on the EOLC button

![31|690x340](upload://o97EaTC1XJ3141SdutrQ7ynah79.png) 

The EOLC screen is designed to look like a clinical system, the layout matches the Questionnaire.
The HIE doesn't use the query mentioned above instead it asks the server for a response for the EOLC Questionniare (url = https://fhir.nhs.uk/STU3/Questionnaire/CareConnect-EOLC-1) and also asks the server to return all resources referenced by the QuestionaireResponse. This results in the following query:

https://data.developer.nhs.uk/ccri-fhir/STU3/QuestionnaireResponse?patient=1184&questionnaire=https://fhir.nhs.uk/STU3/Questionnaire/CareConnect-EOLC-1&_include=*&_count=100

The additional parameters select the patient and set the size of the result.

![30|690x346](upload://KC1ZZntFgsKz8Nt5lBxhFvMITb.png) 

**Other Questionnaires**

EOLC is a quite heavy questionnaire, other examples may be easier to digest. Such as the [18 month questionnaire](https://data.developer.nhs.uk/ccri/term/questionnaire/6) or [NEWS2](https://data.developer.nhs.uk/ccri/term/questionnaire/5)

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## Post #2 by @pacharanero

This is great stuff @mayfield.g.kev - you are rocking this forum right at the moment!

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## Post #3 by @mayfield.g.kev

thanks... I would be posting about SMART on FHIR but I can't get the server stable :frowning:

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**Canonical:** https://openhealthhub.org/t/forms-questionnaires-in-fhir-including-end-of-life-care/2038
**Original content:** https://openhealthhub.org/t/forms-questionnaires-in-fhir-including-end-of-life-care/2038